Outcasts in German society: disabling, life threatening and economic burden of rare diseases not recognized

As many international studies and also the german Ethikrat put it (https://cripples-unite.de/discrimination-unknown-poor-situation-germany-rare-disease/): having a rare disease means facing multiple problems resulting in total exclusion from constitutional rights: 1. the subsistence level is not covered;2. many health costs have to be paid privately;3. in addition transportation and travel costs to see specialized doctors;4. and there are …

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